Information and Support

On this page you will find links to information and service for people diagnosed with MND, their careers and family, as well as Health Professionals and Service Providers who work with MND Clients.

The most comprehensive and up-to-date information can be found at the Motor Neurone Disease Association of Australia’s website at the button below. MND Connect Explore resources, information and support services to find out more about MND, and navigate living with MND.

MND Australia

Palliative Care Clinical Pathways & Referral Network

General Practitioners (GP) and others in your primary care team can make a significant difference to your quality of life, with timely care, support, and symptom management. While the primary healthcare team may be able to meet some of the needs of the person with MND and manage many of their symptoms, the input of other health and social care professionals is vital to the care and support of people with MND.

The GP may function as the gateway to other services, referring to appropriate specialists in the multidisciplinary team.

Where a person with MND is being seen regularly by a Neurologist, or other specialist service, a shared-care approach may be agreed between the specialist and GP. This is particularly important where the specialist is based some distance away and access becomes increasingly difficult as the disease progresses. Visit the Palliative Care Clinical Pathway and Referral Network for information, resources and referral forms and information.

MiNDAUS

Giving patients and carers a direct voice in influencing what they feel are the important priorities for people affected by MND.

MiNDAUS enables patients to register themselves and maintain up-to-date information about their care and condition, Patients can also give permission for their data to be shared with the MiNDAUS Clinical Registry and link with other research programs.

Linking this information will provide a powerful tool to investigate many aspects of motor neurone disease and develop evidence-based policies advancing care and breakthroughs in research to help deliver significant urgent progress in understanding and treating Motor Neurone Disease.